Alphabetical List of Chapters

                              Click on chapter number to be transported immediately to that essay

A Feeling of Helplessness     Ch.65

A Simple Gesture of Respect Ch.110

Acceptance: Yes; Passivity: No   Ch.20

Adding Structure Challenges Lack of Initiative Caused by Lewy Body. Ch.23

Am I a Helicopter Husband?     Ch.2

An Emotional Roller Coaster Day  Ch.72

Are we Still On the Same Team?   Ch.85

Being Lost is Not a Great Experience Ch.78

Blackcap Pie, Memory Loss and Confusion.     Ch.28

Caregiver Meltdown   Ch.26

Care Partner Goals: Safety, Pleasure, Joy. Ch.58

Depression and Lewy Body.       Ch.16

Disheartening Morning; Somber Afternoon; Beautiful Evening.  Ch. 100

Ending our Book on a Positive Note.. and Starting Another.  Ch.52

Every Caregiver Needs an Overload Specialist.   Ch.80

Exhaustion and Relief   Ch. 64

First Pat and Then Ron Join a Memory Choir    Ch.15

Frustration. Ch.83

Good Days.   Ch.4

Hallucinations from Outside and Inside    Ch.1

Here's What We've been Avoiding Telling You   Ch.105

Hoping for a Miracle   Ch.74

How Can We Keep Pat involved in the Conversation?  Ch. 70

I Think I Did OK but Not Better Than OK. Ch.68

I Wasn't Talking in  My Sleep. I Was Talking in Your Sleep. Ch.35

If You Don't Laugh, You'll Cry.   Ch. 24

I'm Grateful We Can Still Disagree  Ch.69

I'm Here at The Refuge, Aren't I, to Stay. Ch.108

I'm Scared to Travel Away from Pat   Ch.19

It's a Good Thing we are Both Introverts.  Ch.54

Keep On Trucking but I Won't Regret a Thing. Ch.25

Lewy Body Affects Pat's Sense of Time. Ch.46

Lewy Body Helps Pat Find a  Way to Honor her Deceased Brother.  Ch.86

Many Small Frustrations  Ch.51

McKenzie Maria McGillicutty: How to Have a Little Fun When it is Hard Finishing Your Sentences. Ch.104

Mornings Can Be Unpredictable in our Lewy Body World.   Ch.43

Mortality.  Ch.13

Need for Support, The.  Ch.5

Noise   Ch.3

Not Driving --  A Blow to Pat's Spirit.   Ch.18

Our Children Want Us to Move into the City.  Ch.47

Our Two Truths are like Oil and Water  Ch.48

Pat and I Go Shopping Together for the First Time in Over a Year.  Ch.84

Pat and I have a Serious Conversation about Death and Loneliness.  Ch.111

Pat and I Watch a Movie whose Main Character has Dementia.   Ch. 75

Pat and Ron Confront the Corona Virus. Ch.21

Pat Asks Ron How He has been Affected by Her Lewy Body. Ch. 40

Pat Begins Taking a Strong Pain Reliever. Ch.109

Pat Calls Me "Dad" and that Feels OK.   Ch.53

Pat Develops a Serious Auto-Immune Disorder.   Ch.62

Pat Eats Little but seems Unconcerned Ch.91

Pat Forgets but then She Remembers  Ch.71

Pat has a Second Syncope Episode --but Doesn't Remember It.   Ch.61

Pat Has Almost Two Pain Free Hours and Ron Begins to Relax Ch.114

Pat has Gumption   Ch.63

Pat is Home with Me in my Heart. Ch.103

Pat is Transferred to a Rehab Facility  Ch. 98

Pat Joins a Memory Choir. Ch.36

Pat Moves to a Very Good Memory Care Center Ch.107

Pat Outwits a Would-Be Seducer  Ch. 88

Pat Reads Nancy Drew to Ron  Ch.102.

Pat Realizes She's been Hallucinating. Ch.34 

Pat Returns to the Hospital Ch. 97

Pat Tells Me How Each Rock is Special  Ch.113

Pat Tells Me How She is Growing  Ch.96

Pat Tells Us She is in Charge Ch. 81

Pat Tells us about a Major Decision She Made.    Ch. 60

Pat Thinks Better than She Can Speak. Ch.112

Pat's Younger Brother Kevin Just Died  Ch.79

Physical Intimacy -- Hugs and More.   Ch.9

Porch Bird Watching on the First Beautiful Spring Day of the Year.   Ch.27

Questions for the New Year: 2019 and then 2020  Ch.10

Ron and Don Discuss their Roles with their Wives. Ch.90

Ron Becomes Anxious and Irritable.   Ch.59

Ron Has a Panic Attack and Pat has a Urinary Tract Infection. Ch.92

Ron Makes a Serious Mistake and then So Does Pat.   Ch.37

Ron Reminds Pat of her Accomplishments. Ch.89

Short- and Long-Term Memory issues. Ch.56

"Showtime."   Ch.8

Slightly Unusual Behaviors.   Ch.17

Slow Motion Panic Attack.    Ch.49

Some Days You Just Want to Cry.  Ch.6

Some Mornings are Full of People.  Ch.30

Something Bad had happened to Lakota. And Pat has a Fall.  Ch. 66

Spring Colors and the Lewy Body Lifestyle.   Ch. 87

Sudden Mood Changes   Ch. 22

Tears of Love   Ch.106

The Apocalypse Arrived and Yet it was Not Apocalyptic.  Ch. 39

The Body Keeps the Score Ch.77

The Gobbler and the Slowpoke: How Lewy Body Affects our Mealtimes.   Ch.76

The Story of Blackberry the Steer: How Pat Saved a Life and Gained a Large Friend   Ch 101

The Transition to the Assisted Living Center was Going Well --Until the Fire Alarm Went Off.  Ch.95

This is MY House   Ch.67

Today's Surprise: Ron Gets a Heart Stent.   Ch.32

Twenty-Four Hours of Chaos  Ch.94

Two Exhausting Days    Ch.44

Two Rons     Ch.45

Waking Dreams, RBD, and Sleep Deprivation.   Ch.14

We are Still a Team.   Ch.12

We're Ready to Accept Help. Ch.93

What Comes Next?  The Lewy Body Sequencing Problem.   Ch.11

What Was Supposed to Bring Pride Brings Shame Instead. Ch. 38.

Who Would take Care of Pat If I Couldn't?       Ch.42

Who Should I Tell I have Lewy Body? Acceptance, Embarrassment, Shame and Trust.    Ch.7

Why Is It so Hard for Pat to Make Choices?  Ch.82

Why Now? Pat has a Flare Up of her Auto-Immune Disease       Ch. 99

Working Together.  Ch.55

Year End Review: A Lewy Body Year of Transition. Ch.115






















Coming Soon!