Alphabetical List of Chapters

                              Click on chapter number to be transported immediately to that essay

A Feeling of Helplessness     Ch.65

A Good Day to Remember Ch.131

A Lesson in Humility: Ron the Caregiver Needs Care  Ch.132

A Sad Day At the Refuge   Ch. 122

A Simple Gesture of Respect Ch.110

A Sudden Setback and a Big decision for Ron  Ch.127

Acceptance: Yes; Passivity: No   Ch.20

Adding Structure Challenges Lack of Initiative Caused by Lewy Body. Ch.23

Am I a Helicopter Husband?     Ch.2

An Emotional Roller Coaster Day  Ch.72

Are we Still On the Same Team?   Ch.85

Being Lost is Not a Great Experience Ch.78

Blackcap Pie, Memory Loss and Confusion.     Ch.28

Caregiver Meltdown   Ch.26

Care Partner Goals: Safety, Pleasure, Joy. Ch.58

Creative Dining the Lewy Body Way.  Ch.133

Depression and Lewy Body.       Ch.16

Disheartening Morning; Somber Afternoon; Beautiful Evening.  Ch. 100

Ending our Book on a Positive Note.. and Starting Another.  Ch.52

Every Caregiver Needs an Overload Specialist.   Ch.80

Exhaustion and Relief   Ch. 64

First Pat and Then Ron Join a Memory Choir    Ch.15

Frustration. Ch.83

Good Days.   Ch.4

Good News: Pat Lodges One Complaint and Makes Two Requests.  Ch.119

Hallucinations from Outside and Inside    Ch.1

Here's What We've been Avoiding Telling You   Ch.105

Hoping for a Miracle   Ch.74

Hospice. Ch.117

How Can We Keep Pat involved in the Conversation?  Ch. 70

I Think I Did OK but Not Better Than OK. Ch.68

I Wasn't Talking in  My Sleep. I Was Talking in Your Sleep. Ch.35

If You Don't Laugh, You'll Cry.   Ch. 24

I'm Grateful We Can Still Disagree  Ch.69

I'm Here at The Refuge, Aren't I, to Stay. Ch.108

I'm Ready to be Gone. Ch.123

I'm Scared to Travel Away from Pat   Ch.19

It's a Good Thing we are Both Introverts  Ch.54

Keep On Trucking but I Won't Regret a Thing Ch.25

Keeping "Victories" and "Defeats" in Perspective  Ch.126

Lewy Body Affects Pat's Sense of Time. Ch.46

Lewy Body Helps Pat Find a  Way to Honor her Deceased Brother.  Ch.86

Many Small Frustrations  Ch.51

McKenzie Maria McGillicutty: How to Have a Little Fun When it is Hard Finishing Your Sentences. Ch.104

Mornings Can Be Unpredictable in our Lewy Body World.   Ch.43

Mortality.  Ch.13

Need for Support, The  Ch.5

Noise   Ch.3

Not Driving --  A Blow to Pat's Spirit   Ch.18

Our Children Want Us to Move into the City  Ch.47

Our Two Truths are like Oil and Water  Ch.48

Pat and I Go Shopping Together for the First Time in Over a Year  Ch.84

Pat and I have a Serious Conversation about Death and Loneliness  Ch.111

Pat and I Watch a Movie whose Main Character has Dementia   Ch. 75

Pat and Ron Confront the Corona Virus Ch.21

Pat Asks Ron How He has been Affected by Her Lewy Body. Ch.40

Pat Begins Taking a Strong Pain Reliever. Ch.109

Pat Calls Me "Dad" and that Feels OK.   Ch.53

Pat Cannot Say Ron's Name  Ch.118

Pat Develops a Serious Auto-Immune Disorder   Ch.62

Pat Eats Little but seems Unconcerned Ch.91

Pat Forgets but then She Remembers  Ch.71

Pat has a Second Syncope Episode --but Doesn't Remember It.   Ch.61

Pat Has Almost Two Pain Free Hours and Ron Begins to Relax Ch.114

Pat is Taken Off  Opioid Pain Medication and Immediately Functions Better  Ch.120

Pat has Gumption   Ch.63

Pat is Home with Me in my Heart. Ch.103

Pat is Transferred to a Rehab Facility  Ch. 98

Pat Joins a Memory Choir. Ch.36

Pat Moves to a Very Good Memory Care Center Ch.107

Pat Outwits a Would-Be Seducer  Ch. 88

Pat Rallies and Says Something Beautiful   Ch.125

Pat Reads Nancy Drew to Ron  Ch.102.

Pat Realizes She's been Hallucinating Ch.34 

Pat Returns to the Hospital Ch. 97

Pat Still Gets to Choose  Ch.116

Pat Tells Me How Each Rock is Special  Ch.113

Pat Tells Me How She is Growing  Ch.96

Pat Tells Us She is in Charge Ch. 81

Pat Tells us about a Major Decision She Made.    Ch. 60

Pat Thinks Better than She Can Speak. Ch.112

Pat's Protectors Work Together to Help her Heal  Ch.130

Pat's Younger Brother Kevin Just Died  Ch.79

Physical Intimacy -- Hugs and More   Ch.9

Porch Bird Watching on the First Beautiful Spring Day of the Year   Ch.27

Questions for the New Year: 2019 and then 2020  Ch.10

Ron and Don Discuss their Roles with their Wives Ch.90

Ron Becomes Anxious and Irritable   Ch.59

Ron Has a Panic Attack and Pat has a Urinary Tract Infection Ch.92

Ron Makes a Serious Mistake and then So Does Pat   Ch.37

Ron Reminds Pat of her Accomplishments Ch.89

Ron, You Used to be Funnier  Ch.129

Short- and Long-Term Memory issues Ch.56

"Showtime"   Ch.8

Slightly Unusual Behaviors   Ch.17

Slow Motion Panic Attack   Ch.49

Some Days You Just Want to Cry  Ch.6

Some Mornings are Full of People  Ch.30

Something Bad had happened to Lakota. And Pat has a Fall  Ch. 66

Spring Colors and the Lewy Body Lifestyle   Ch. 87

Sudden Mood Changes   Ch. 22

Taste and Touch Connect Us  Ch.121

Tears of Love   Ch.106

The Apocalypse Arrived and Yet it was Not Apocalyptic  Ch. 39

The Body Keeps the Score Ch.77

The Gobbler and the Slowpoke: How Lewy Body Affects our Mealtimes.   Ch.76

The Story of Blackberry the Steer: How Pat Saved a Life and Gained a Large Friend   Ch 101

The Transition to the Assisted Living Center was Going Well --Until the Fire Alarm Went Off.  Ch.95

Time is Running Out  Ch.124

This is MY House   Ch.67

Today's Surprise: Ron Gets a Heart Stent.   Ch.32

Twenty-Four Hours of Chaos  Ch.94

Two Exhausting Days    Ch.44

Two Rons     Ch.45

Waking Dreams, RBD, and Sleep Deprivation   Ch.14

We are Still a Team   Ch.12

We're Ready to Accept Help Ch.93

What Comes Next?  The Lewy Body Sequencing Problem   Ch.11

What Was Supposed to Bring Pride Brings Shame Instead Ch. 38.

Who Would take Care of Pat If I Couldn't?       Ch.42

Who Should I Tell I have Lewy Body? Acceptance, Embarrassment, Shame and Trust    Ch.7

Why Is It so Hard for Pat to Make Choices?  Ch.82

Why Now? Pat has a Flare Up of her Auto-Immune Disease       Ch. 99

Working Together  Ch.55

Year End Review: A Lewy Body Year of Transition Ch.115






















Coming Soon!