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LEWY BODY DIALOGUE

Conversations between a Thoughtful Woman with Lewy Body Dementia and her Care Partner Husband

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  • Introduction to the Lewy Body dialogue
  • Living Alone after Lewy Body: Introduction
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  • Ch.33. Pat Tells Our Book Club Members She Has Lewy Body.

    Ch.33. Pat Tells Our Book Club Members She Has Lewy Body.                   Pat and I first addressed the question of whom to tell you Read more
  • Ch.32. Today’s Surprise: Ron gets a Heart Stent.

    Ch.32. Today’s Surprise: Ron gets a Heart Stent. May 23, 2019.        About one month ago I noticed I was having breathing problems while exercising. They didn’t go away, Read more
  • Ch.31. “I Know You are my Husband because You are Wearing the Same Shirt.”

    Ch.31. “I Know You are my Husband because You are Wearing the Same Shirt.”             Awkward moment. Pat says: “I don’t think I’ve been hallucinating much, Read more
  • Ch.30. Some Mornings are Full of People.

    Ch.30. Some Mornings are Full of People.             This morning Pat woke up trying to speak with several people. These people had various jobs to do Read more
  • Ch. 29. We are “Care Partners.”

    Ch. 29. We are “Care Partners.”         Pat and I recently attended a local conference for professionals treating dementia patients. People there were using the term “care partners” Read more
  • Ch.28. Blackcap Pie, Memory Loss and Confusion.

    Ch.28. Blackcap Pie, Memory Loss and Confusion.             We had company yesterday morning at breakfast. I made waffles. Then the four of us took a ride Read more
  • Ch.27. Porch Bird Watching on the First Beautiful Spring Day of the Year.

    Ch.27. Porch Bird Watching on the First Beautiful Spring Day of the Year.             Today, in mid-April, was the first 60 plus degree day this year Read more
  • Ch.26. Caregiver Meltdown.

    Ch.26. Caregiver Meltdown.             I am writing this piece almost exactly 24 hours after I had a gigantic, ugly, scary meltdown. Things hadn’t been going well Read more
  • Ch.25“Keep on Trucking” but “I Won’t Regret a Thing”

    Ch.25“Keep on Trucking” but “I Won’t Regret a Thing”             Shopping today, I ran into a friend I’ll call Ellie whose husband Max is currently in Read more
  • Ch.24. If You Don’t Laugh, You’ll Cry.

    Ch.24. If You Don’t Laugh, You’ll Cry.             Pat and I attended our Lewy Body group in St. Paul today. Part way through someone I’ll call Read more
  • Ch.23. Adding Structure Challenges Lack of Initiative Caused by Lewy Body.

    Ch.23. Adding Structure Challenges Lack of Initiative Caused by Lewy Body.             Q: “Hon, what would you like to do today?”             Read more
  • Ch.22. Sudden Mood Changes.

    Ch.22. Sudden Mood Changes.             When Pat was first diagnosed with Lewy Body I asked several people this question: What is the hallmark of Lewy Body? Read more
  • Ch. 21 Pat and Ron Confront the Corona Virus

    Ch. 21    Pat and Ron Confront the Corona Virus           I am writing in early March 2020, about one month after the Corona virus emerged in Read more
  • Ch.20: Acceptance: Yes; Passivity: No

    Ch.20: Acceptance: Yes; Passivity: No             Pat and I recently attended the Meeting of the Minds dementia conference in St. Paul, MN. There were about 1,000 Read more
  • Ch.19. I’m Scared to Travel Away from Pat.

    Ch.19. I’m Scared to Travel Away from Pat.             Pat and I have spent the great majority of time together since we both retired and Pat Read more
  • Ch. 18. Not Driving: A Blow to Your Sense of Self

    Ch. 18: Not Driving – A Blow to Your Sense of Self.             Do you remember how proud you were when you passed your driver’s test, Read more
  • Ch.17. Slightly Unusual Behaviors (SUBs).

    Ch.17. Slightly Unusual Behaviors (SUBs).               Pat has never been a model of conventionality. In fact, she’s sometimes     decidedly unconventional. For example, for years Read more
  • Ch.16. Depression and Lewy Body.

     Ch.16. Depression and Lewy Body.              It’s February, 2019 in Wisconsin as I write this piece. There’s at least a foot of snow on the ground everywhere Read more
  • Ch. 15 First Pat and then Ron Join a Memory Choir

    Ch.15 First Pat and then Ron Join a Memory Choir   First Pat Joins a Memory Choir.             August 2019. Several months ago, Pat and I attended a memory care Read more
  • Ch.14 Waking Dreams, RBD, and Sleep Deprivation.

    Ch.14. Waking Dreams, RBD, and Sleep Deprivation.              Recently I awoke around 1 a.m. feeling chilly. Oddly, the blankets had disappeared. I heard noises from Pat’s Read more
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Ron & Pat Potter-Efron

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