Ch.33. Pat Tells Our Book Club Members She Has Lewy Body.                   Pat and I first addressed the question of whom to tell you Read more

Ch.32. Today’s Surprise: Ron gets a Heart Stent. May 23, 2019.        About one month ago I noticed I was having breathing problems while exercising. They didn’t go away, Read more

Ch.31. “I Know You are my Husband because You are Wearing the Same Shirt.”             Awkward moment. Pat says: “I don’t think I’ve been hallucinating much, Read more

Ch.30. Some Mornings are Full of People.             This morning Pat woke up trying to speak with several people. These people had various jobs to do Read more

Ch. 29. We are “Care Partners.”         Pat and I recently attended a local conference for professionals treating dementia patients. People there were using the term “care partners” Read more

Ch.28. Blackcap Pie, Memory Loss and Confusion.             We had company yesterday morning at breakfast. I made waffles. Then the four of us took a ride Read more

Ch.27. Porch Bird Watching on the First Beautiful Spring Day of the Year.             Today, in mid-April, was the first 60 plus degree day this year Read more

Ch.26. Caregiver Meltdown.             I am writing this piece almost exactly 24 hours after I had a gigantic, ugly, scary meltdown. Things hadn’t been going well Read more

Ch.25“Keep on Trucking” but “I Won’t Regret a Thing”             Shopping today, I ran into a friend I’ll call Ellie whose husband Max is currently in Read more

Ch.24. If You Don’t Laugh, You’ll Cry.             Pat and I attended our Lewy Body group in St. Paul today. Part way through someone I’ll call Read more

Ch.23. Adding Structure Challenges Lack of Initiative Caused by Lewy Body.             Q: “Hon, what would you like to do today?”             Read more

Ch.22. Sudden Mood Changes.             When Pat was first diagnosed with Lewy Body I asked several people this question: What is the hallmark of Lewy Body? Read more

Ch. 21    Pat and Ron Confront the Corona Virus           I am writing in early March 2020, about one month after the Corona virus emerged in Read more

Ch.20: Acceptance: Yes; Passivity: No             Pat and I recently attended the Meeting of the Minds dementia conference in St. Paul, MN. There were about 1,000 Read more

Ch.19. I’m Scared to Travel Away from Pat.             Pat and I have spent the great majority of time together since we both retired and Pat Read more

Ch. 18: Not Driving – A Blow to Your Sense of Self.             Do you remember how proud you were when you passed your driver’s test, Read more

Ch.17. Slightly Unusual Behaviors (SUBs).               Pat has never been a model of conventionality. In fact, she’s sometimes     decidedly unconventional. For example, for years Read more

 Ch.16. Depression and Lewy Body.              It’s February, 2019 in Wisconsin as I write this piece. There’s at least a foot of snow on the ground everywhere Read more

Ch.15 First Pat and then Ron Join a Memory Choir   First Pat Joins a Memory Choir.             August 2019. Several months ago, Pat and I attended a memory care Read more

Ch.14. Waking Dreams, RBD, and Sleep Deprivation.              Recently I awoke around 1 a.m. feeling chilly. Oddly, the blankets had disappeared. I heard noises from Pat’s Read more