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LEWY BODY DIALOGUE

Conversations between a Thoughtful Woman with Lewy Body Dementia and her Care Partner Husband

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  • Ch.89 Ron Reminds Pat of her Accomplishments

    Ch.89 Ron Reminds Pat of her Accomplishments           May, 2021.           Pat and I were chatting this morning when I mentioned that her contributions Read more
  • Ch.88 Pat Outwits a Would-be Seducer

    Ch.88 Pat Outwits a Would-be Seducer           April 2021           It’s evening and Pat and I are having a nice talk. “I want to Read more
  • Ch.87 Spring Colors and the Lewy Body Lifestyle.

    Ch.87 Spring Colors and the Lewy Body Lifestyle. April, 2021.           Spring colors! Silver-green new wisps of leaves sliding down Willow branches; Yellow-green Birch leaflets; red-brown sandstone boulders Read more
  • Ch86 Lewy Body Helps Pat Finds a Way to Honor her Deceased Brother

    Ch86 Lewy Body Helps Pat Finds a Way to Honor her Deceased Brother           Several days after Kevin died (a sudden heart attack) a package came for Read more
  • Ch.85 Are We Still on the Same Team?

    Ch.85 Are We Still on the Same Team? March 2021           The Lewy Body journey is a difficult one both for the affected individual and their care partner. Read more
  • Ch.84 Pat and I Go Shopping Together for the First Time in a Year

    Ch.84 Pat and I Go Shopping Together for the First Time in a Year           March, 2021           Pat and I have finally been Read more
  • Ch.83 Frustration! Pat Objects to Taking an Important Medicine

    Ch.83 Frustration! Pat Objects to Taking an Important Medicine           You probably know, if you are dealing with Lewy Body, that digestive problems are common. In Pat’s Read more
  • Ch.82 Why Is It So Hard for Pat to Make Choices?

    Ch.82 Why Is It So Hard for Pat to Make Choices? March, 2021           Gee, I thought, we seem to be watching an awful lot of television today. Read more
  • Ch.81 Pat Tells Us that She is in Charge

    Ch.81 Pat Tells Us that She is in Charge March 2021           Pat’s brother Kevin died almost two weeks ago. Kevin lived in the old family home that Read more
  • Ch.80 Every Caregiver Needs an Overload Specialist

    Ch.80 Every Caregiver Needs an Overload Specialist February, 2021.           Our twice monthly Lewy Body support group met last week, and it was my turn to talk. I Read more
  • Ch.79 Pat’s Younger Brother Kevin Just Died

    Ch.79 Pat’s Younger Brother Kevin Just Died February, 2021           I heard the phone ring at 1 a.m. last Sunday night, three days ago. Then a message. Waking, Read more
  • Ch.78 Being Lost is Not a Great Experience

    Ch.78 Being Lost is Not a Great Experience           February 2021.           Do you remember the opening scene of On Golden Pond, during which Henry Read more
  • Ch. 77 The Body Keeps the Score

    Ch. 77  The Body Keeps the Score February 2021           Bessel Van der Kolk wrote a book with this title in 2014. It was a breakthrough book because Read more
  • Ch.76 The Gobbler and the Slow Poke: How Lewy Body has Affected our Mealtimes

    Ch.76  The Gobbler and the Slow Poke: How Lewy Body has Affected our Mealtimes           I’ve always been a fast eater. Pat has always taken her time. Read more
  • Ch. 75 Pat and I Watch a Movie whose Main Character has Dementia

    Ch. 75 Pat and I Watch a Movie whose Main Character has Dementia    January 2021      Pat and I just finished watching and discussing the movie Elizabeth is Missing, starring Read more
  • Ch. 74 Hoping for a Miracle

    Ch. 74   Hoping for a Miracle           Dec. 29, 2020.           Blackie the cat sits on my lap as I consider all that’s Read more
  • Ch.73 Three in the Morning: Leaving Our Home to Seek Pat’s Home

    Ch.73 Three in the Morning: Leaving Our Home to Seek Pat’s Home           December, 2020.           It’s 3 a.m. and I awaken to the Read more
  • Ch.72 An Emotional Roller Coaster Day

    Ch.72 An Emotional Roller Coaster Day           November, 2020           It’s become a cliché to say that the Lewy Body experience feels like being Read more
  • Ch. 71 Pat Forgets but then She Remembers

    Ch. 71 Pat Forgets but then She Remembers November 2020. (Note that we first covered this topic in Ch.62: Short- and Long-Term Memory Loss, that was written in April, 2020.)     Read more
  • Ch.70 How Can We Keep Pat Involved in the Conversation?

    Ch.70 How Can We Keep Pat Involved in the Conversation?           November, 2020.           We’ve had a week of beautiful weather here in Western Read more
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Ron & Pat Potter-Efron

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