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LEWY BODY DIALOGUE

Conversations between a Thoughtful Woman with Lewy Body Dementia and her Care Partner Husband

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  • Ch.69 I’m Grateful We Can Still Disagree

    Ch.69 I’m Grateful We Can Still Disagree November 2020           I stumbled into a difficult situation a few days ago. It concerned a man I’ll call Sidney, a Read more
  • Ch.68 “I think I Did OK but Not Better Than OK”

    Ch.68 “I think I Did OK but Not Better Than OK” October, 2020.           Once a year Pat is scheduled to take a battery of neuropsychology tests that Read more
  • Ch.67 “This is My House”

    Ch.67 “This is My House” October, 2020           Pat makes this remark and then points out several items on our fireplace mantle that are familiar: two paint by Read more
  • Ch 66. Something Bad has Happened to Lakota. And Pat has a Fall.

    Ch 66. Something Bad has Happened to Lakota. And Pat has a Fall.           October, 2020.            My horse Lakota and I have established Read more
  • Ch.65 A Feeling of Helplessness

    Ch.65 A Feeling of Helplessness               August 2020.           “Ron, what’s going on in the room above us? There’s crashing sounds and Read more
  • Ch.64 Exhaustion and Relief

     Ch.64  Exhaustion and Relief August 2020           These last few weeks have been physically and psychologically exhausting for me as Pat has endured the symptoms of bullous pemphigoid, Read more
  • Ch.63 Pat has Gumption

    Ch.63   Pat has Gumption           My guess is that if you are under 50 years old you have probably never heard the word “gumption.” It truly Read more
  • Ch.62 Pat Develops a Serious Auto-Immune Disorder

    Ch.62   Pat Develops a Serious Auto-Immune Disorder           July, 2020.           Pat woke up about a month ago with liquid filled blisters on Read more
  • Ch.61 Pat has a Second Syncope Episode – but Doesn’t Remember It.

    Ch.61   Pat has a Second Syncope Episode – but Doesn’t Remember It.  June, 2020. It’s 8 a.m. and Pat has risen to start the day. I hear her exiting the bedroom, Read more
  • Ch.60 Pat Tells Us about A Major Decision

    Ch.60   Pat Tells Us about A Major Decision           Our family has begun weekly zoom sessions to lessen the isolation associated with Covid-19 safety precautions. This Read more
  • Ch.59 Ron Becomes Anxious and Irritable

    Ch.59 Ron Becomes Anxious and Irritable Summer, 2020           Lately I’ve been anxious and irritable. I’ll talk about my irritability later in this essay, but for now let Read more
  • Ch. 58 Care Partner Goals: Safety, Pleasure, Joy

    Ch. 58  Care Partner Goals: Safety, Pleasure, Joy           Neuroscientists write that the best thing we can do for a newborn child is to offer that child Read more
  • Ch.57 One Year Anniversary of Ron’s Heart Stent Operation

    Ch.57   One Year Anniversary of Ron’s Heart Stent Operation           Today is May 23, 2020, exactly one year after I received my unexpected heart stent operation. Read more
  • Ch.56 Short- and Long-Term Memory Loss

    Ch.56   Short- and Long-Term Memory Loss April 2020           I asked Pat what she thought of the movie we’d seen together the day before. “What movie?” she Read more
  • Ch 55 Working Together

    Ch.55  Working Together March 2020           I’m getting our blog ready to publish as a book. It’s complicated. Today I need to do something a little tricky: is Read more
  • Ch.56 Short- and Long-Term Memory Loss

    Ch.56   Short- and Long-Term Memory Loss April 2020           I asked Pat what she thought of the movie we’d seen together the day before. “What movie?” she Read more
  • Ch. 54 It's a good Thing We are Both Introverts

    Ch.54   It’s a Good Thing We are Both Introverts           As of today (March 23, 2020) the state of Wisconsin is officially on “Safer at Home” Read more
  • Ch.53 Pat Calls Me “Dad” and that Feels OK

    Ch.53 Pat Calls Me “Dad” and that Feels OK March 2020.           Pat has been calling me “dad” fairly often over the last few weeks. She does that Read more
  • Ch. 52 Ending our Book on a Positive Note.. and Starting Another.

    Ch. 52 Ending our Book on a Positive Note.. and Starting Another. December, 2019             Pat and I began this dialogue just over a year ago. Many Read more
  • Ch 51 Many Small Frustrations

    Ch 51 Many Small Frustrations             Pat has become frustrated with me several times in the last few days. Sometimes she wants me to do something Read more
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Ron & Pat Potter-Efron

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