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LEWY BODY DIALOGUE

Conversations between a Thoughtful Woman with Lewy Body Dementia and her Care Partner Husband

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  • Introduction to the Lewy Body dialogue
  • Living Alone after Lewy Body: Introduction
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  • Ch.53 Pat Calls Me “Dad” and that Feels OK

    Ch.53 Pat Calls Me “Dad” and that Feels OK March 2020.           Pat has been calling me “dad” fairly often over the last few weeks. She does that Read more
  • Ch. 52 Ending our Book on a Positive Note.. and Starting Another.

    Ch. 52 Ending our Book on a Positive Note.. and Starting Another. December, 2019             Pat and I began this dialogue just over a year ago. Many Read more
  • Ch 51 Many Small Frustrations

    Ch 51 Many Small Frustrations             Pat has become frustrated with me several times in the last few days. Sometimes she wants me to do something Read more
  • Ch. 50 Ron Joins the Stand in the Light Memory Choir

    Ch. 50 Ron Joins the Stand in the Light Memory Choir      January, 2020.        We’ve written before about how living with Lewy Body has provided opportunities for new Read more
  • Ch.49 Slow Motion Panic Attack

    Ch.49 Slow Motion Panic Attack             You already know, if you’ve been reading this journal, that I (Ron) am a worrier. I tend to think much Read more
  • Ch. 48 Our Two Truths Are Like Oil and Water

    Ch. 48   Our Two Truths Are Like Oil and Water Round One: Pat tells me that last night she was surrounded by several people who accused her of doing bad Read more
  • Ch. 47 Our Children Want Us to Move to the City

    Ch. 47 Our Children Want Us to Move to the City             I’m writing this the day after Christmas, 2019. As my son in law Mark Read more
  • Ch.46 Lewy Body Affects Pat’s Sense of Time

    Ch.46 Lewy Body Affects Pat’s Sense of Time             We were going to meet friends at 1 pm to go to a movie. But before that Read more
  • Ch.45 Two Rons

    Ch.45 Two Rons             “Ron, was that Lewy Body doing this to me?” Pat asked this question about 8 p.m. yesterday; it was a very good Read more
  • Ch.44. Two Exhausting Days: Pat Faints on Wednesday but Sings in a Concert on Thursday.

    Ch.44. Two Exhausting Days: Pat Faints on Wednesday but Sings in a Concert on Thursday.             October, 2019.             I had been Read more
  • Ch.43. Mornings Can be Unpredictable.

    Ch.43. Mornings Can be Unpredictable.             I sense the unpredictability caused by Lewy Body disruptions frequently in our mornings together.                Read more
  • Ch.42. Who Would Take Care of Pat If I Couldn’t?

    Ch.42. Who Would Take Care of Pat If I Couldn’t?             This concern has been gnawing at me ever since I received a heart stent on Read more
  • Ch. 41: What Ron Doesn’t Understand About Me.

    Ch. 41: What Ron Doesn’t Understand About Me.             [This chapter is initiated by Pat with a response from Ron]  Because I can’t drive I’ve lost the Read more
  • Ch.40. Pat Asks Ron How He has been Affected by Her Lewy Body.

    Ch.40. Pat Asks Ron How He has been Affected by Her Lewy Body.             After we discussed our last entry, Pat asked me for more details Read more
  • Ch.39. “The Apocalypse Arrived and Yet it was Not Apocalyptic.”

    Ch.39. “The Apocalypse Arrived and Yet it was Not Apocalyptic.”             This quote comes from the novel Exit West, by Moshin Hamid. The author writes about Read more
  • Ch.38. What was Supposed to Bring Pride Brings Shame Instead.

    Ch.38. What was Supposed to Bring Pride Brings Shame Instead.             Pat belongs to the Stand in the Light memory choir, as explained in chapter 40. Read more
  • Ch.37. Ron Makes a Serious Mistake – Then So does Pat.

    Ch.37. Ron Makes a Serious Mistake – Then So does Pat.             I’ve been going to Eau Claire to exercise at the cardiac rehabilitation center since Read more
  • Ch.36. Pat Joins a Memory Choir.

    Ch.36. Pat Joins a Memory Choir.             August 2019. Several months ago, Pat and I attended a memory care conference in Eau Claire. We walked through Read more
  • Ch.35. “I Wasn’t Talking in My Sleep. I was Talking in Your Sleep.”

    Ch.35. “I Wasn’t Talking in My Sleep. I was Talking in Your Sleep.”             Four a.m.; I awake to hear Pat dialoging with some of her Read more
  • Ch.34. Pat Realizes She’s been Hallucinating.

    Ch.34. Pat Realizes She’s been Hallucinating. (Originally written Autumn, 2019. Added Update at End of Essay.)             “Ron, I want the truth. Was anyone here in the Read more
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Ron & Pat Potter-Efron

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