Ch.65 A Feeling of Helplessness               August 2020.           “Ron, what’s going on in the room above us? There’s crashing sounds and Read more

 Ch.64  Exhaustion and Relief August 2020           These last few weeks have been physically and psychologically exhausting for me as Pat has endured the symptoms of bullous pemphigoid, Read more

Ch.63   Pat has Gumption           My guess is that if you are under 50 years old you have probably never heard the word “gumption.” It truly Read more

Ch.62   Pat Develops a Serious Auto-Immune Disorder           July, 2020.           Pat woke up about a month ago with liquid filled blisters on Read more

Ch.61   Pat has a Second Syncope Episode – but Doesn’t Remember It.  June, 2020. It’s 8 a.m. and Pat has risen to start the day. I hear her exiting the bedroom, Read more

Ch.60   Pat Tells Us about A Major Decision           Our family has begun weekly zoom sessions to lessen the isolation associated with Covid-19 safety precautions. This Read more

Ch.59 Ron Becomes Anxious and Irritable Summer, 2020           Lately I’ve been anxious and irritable. I’ll talk about my irritability later in this essay, but for now let Read more

Ch. 58  Care Partner Goals: Safety, Pleasure, Joy           Neuroscientists write that the best thing we can do for a newborn child is to offer that child Read more

Ch.57   One Year Anniversary of Ron’s Heart Stent Operation           Today is May 23, 2020, exactly one year after I received my unexpected heart stent operation. Read more

Ch.56   Short- and Long-Term Memory Loss April 2020           I asked Pat what she thought of the movie we’d seen together the day before. “What movie?” she Read more

Ch.55  Working Together March 2020           I’m getting our blog ready to publish as a book. It’s complicated. Today I need to do something a little tricky: is Read more

Ch.56   Short- and Long-Term Memory Loss April 2020           I asked Pat what she thought of the movie we’d seen together the day before. “What movie?” she Read more

Ch.54   It’s a Good Thing We are Both Introverts           As of today (March 23, 2020) the state of Wisconsin is officially on “Safer at Home” Read more

Ch.53 Pat Calls Me “Dad” and that Feels OK March 2020.           Pat has been calling me “dad” fairly often over the last few weeks. She does that Read more

Ch. 52 Ending our Book on a Positive Note.. and Starting Another. December, 2019             Pat and I began this dialogue just over a year ago. Many Read more

Ch 51 Many Small Frustrations             Pat has become frustrated with me several times in the last few days. Sometimes she wants me to do something Read more

Ch. 50 Ron Joins the Stand in the Light Memory Choir      January, 2020.        We’ve written before about how living with Lewy Body has provided opportunities for new Read more

Ch.49 Slow Motion Panic Attack             You already know, if you’ve been reading this journal, that I (Ron) am a worrier. I tend to think much Read more

Ch. 48   Our Two Truths Are Like Oil and Water Round One: Pat tells me that last night she was surrounded by several people who accused her of doing bad Read more

Ch. 47 Our Children Want Us to Move to the City             I’m writing this the day after Christmas, 2019. As my son in law Mark Read more