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LEWY BODY DIALOGUE

Conversations between a Thoughtful Woman with Lewy Body Dementia and her Care Partner Husband

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  • Introduction to the Lewy Body dialogue
  • Living Alone after Lewy Body: Introduction
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  • Ch.159 Transitions

    Ch.159 Transitions  August 3, 2022            I made a promise to myself not to make any significant decisions during my first month of grieving for Pat. I had Read more
  • Ch. 158 Heartache

    Ch. 158 Heartache           July 28, 2022. Several weeks ago, I agreed to a request from Marian, a social worker at Mayo Clinic in Eau Claire, to speak Read more
  • Ch.157 Beautiful Service, Somber Burial, and Unending Grief

    Ch.157 Beautiful Service, Somber Burial, and Unending Grief Monday, July 25, 2022             Pat was honored on Saturday with a combination funeral and celebration of her life. Read more
  • Ch.156 Unprepared for Life After Lewy Body: My Fear of Boredom

    Ch.156 Unprepared for Life After Lewy Body: My Fear of Boredom July 9, 2022 Today, eight days after my wife Pat died from the effects of Lewy Body Dementia, I read about Read more
  • Ch.148 PAT POTTER-EFRON OBITUARY

    Ch.148 PAT POTTER-EFRON OBITUARY Patricia Sue Potter-Efron, 77, passed away on Friday, July 1, 2022, at Azura Memory Care Center, from a combination of Lewy Body Dementia and the auto-immune disorder Read more
  • Ch. 147 Pat Quietly Passes Away

    Ch. 147 Pat Quietly Passes Away June 30 and July 1,2022 I answered the phone just as I was about to leave my house to drive to The Refuge. “Will you get Read more
  • Ch.146 Ron Feels a Premonition

    Ch.146 Ron Feels a Premonition June 27,2022. I don’t believe in premonitions, I’m telling myself. I’ve never had one, either… until this morning. But today, when I came to The Refuge and Read more
  • Ch.145 Getting Stuck in the Courtyard Brings Back a Sad Memory

    June 21, 2022 The Refuge, Pat’s memory care facility, has a small but attractive courtyard in which residents can sit, take short walks, and visit. I take Pat there every day Read more
  • Ch.144 Pat Keeps Losing Weight Even Though She Eats Well.

    120.8 pounds. That’s Pat’s most recent weight. This from a woman who weighed over 200 pounds before Lewy Body began its attack on her brain and body. True, Pat is Read more
  • Ch. 143 Pat No Longer Has the Ability to Help Write This Dialogue.

    June 2022           I have feared this moment, the instant when I must type the following message: Pat can no longer contribute her words to our dialogue. Now, Read more
  • Ch.142 Looking into the Void: Pat’s Blank Stare Scares Ron

    May 2022           It’s lunchtime at The Refuge. Pat eats a few bites; I look down to pick up another forkful for her but when I return it’s Read more
  • Ch.141 “I Love You, Sometimes”

    May 2022           It took me forty-five seconds to walk speedily from the dining room to the kitchen, open the cupboard, select a wide but short glass, and Read more
  • Ch. 140 A Death in the Family

    Ch. 140  A Death in the Family              May 2022           “My mom is dying.”           Hector, my good friend Read more
  • Ch.139 Good Day/Bad Day: the Lewy Body Roller Coaster is Still Operating

    Ch.139 Good Day/Bad Day: the Lewy Body Roller Coaster is Still Operating           May 2022           Here’s how Pat was diagnosed with Lewy Body: Read more
  • Ch.138 Ron Refuses to Give Up Hope

    Ch.138 Ron Refuses to Give Up Hope             May 2022           “I hope Pat lives at least to the end of this year,” Read more
  • Ch.137 Pat Was Diagnosed with Lewy Body Dementia Exactly Four Years Ago Today

    Ch.137 Pat Was Diagnosed with Lewy Body Dementia Exactly Four Years Ago Today           April 12, 2022           This day marks the fourth-year anniversary Read more
  • Ch. 136: Ron’s Covid Fatigue Helps Him Better Understand How Lewy Body Affects Pat

    Ch. 136: Ron’s Covid Fatigue Helps Him Better Understand How Lewy Body Affects Pat           My bout with Covid has given me insight about Pat’s Lewy Body Read more
  • Ch.135 A Covid Outbreak at The Refuge Includes Pat and Then Ron

    Ch.135 A Covid Outbreak at The Refuge Includes Pat and Then Ron          April 2022.          Saturday           I noticed that Jeff, a Read more
  • Ch.134 “I Wonder What I’ve Missed”

    Ch.134 “I Wonder What I’ve Missed”            April 2022           The last few days with Pat have been exciting because she’s been healthy, happy, Read more
  • Ch.133 Creative Dining the Lewy Body Way

    Ch.133  Creative Dining the Lewy Body Way April 2022           Mealtimes with Pat can be intriguing adventures. Today, for example, Pat decided to push her luncheon of peas Read more
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Ron & Pat Potter-Efron

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