Ch.133  Creative Dining the Lewy Body Way April 2022           Mealtimes with Pat can be intriguing adventures. Today, for example, Pat decided to push her luncheon of peas Read more

Ch.132 A Lesson in Humility: Ron the Caregiver Needs Care           I had become arrogant: Ron the caregiver had only missed seeing Pat for one day all Read more

Ch.131 A Good Day to Remember           March 24, 2022           Unplanned, I arrive early at The Refuge, at 10:45 instead of my usual Read more

Ch.130 Pat’s Protectors Work Together to Help Her Heal           Feb. 2022           The first warning signs came from Pat’s attendants at The Refuge. Read more

Ch.129 “Ron, You Used to be Funnier.” January 2022       I was having a conversation with Jackie, a woman I’ve known for over twenty years. She’s been reading our blog, Read more

Ch.128 The Everyday Club: Why We Come Daily to See Our Loved Ones January 2022           There are approximately twenty residents at The Refuge. Some of them, sadly, Read more

Ch.127 A Sudden Setback for Pat and a Big Decision for Ron           January 2022. Please note that I have backtracked to January.  I had jumped ahead Read more

Ch.126 Keeping “Victories” and “Defeats” in Perspective           March 2022           Yesterday Pat ate “real” food: A ham and cheese sandwich, a bowl of Read more

Ch.125 Pat Rallies and Says Something Beautiful March 2022           Three days ago, Pat was barely conscious, heavily sedated with morphine but unable to communicate even when less Read more

Ch. 124 Time is Running Out           February 2022           This morning Pat was pretty much nonresponsive even though she hadn’t had any morphine Read more

Ch.123 “I’m Ready to be Gone.”           February 2022           I’ve been feeling lonely this week. I look around our house and see nobody Read more

Ch.122 A Sad Day at The Refuge           January 2022           The Refuge is not large; about 20 persons reside there at any time. Read more

Ch.121  Taste and Touch Connect Us           December 2021           I usually come to The Refuge twice a day to “visit” Pat, once from Read more

Ch.120 Pat is Taken Off Opioid Pain Medicine and Immediately Functions Better           December 2021           Just a few weeks ago I wrote about Read more

Ch.119 Good News: Pat Lodges a Complaint and Makes Two Requests           December 2021 Part One: The Complaint.           I entered The Refuge at the Read more

Ch.118 Pat Cannot Say Ron’s Name           December 2021           Today at lunchtime we met Cathy, our hospice nurse. She will be seeing Pat Read more

Ch.117 Hospice November 29, 2021.           Pat has been receiving palliative care from a local agency for about a month. But I’ve been encouraged to engage that agency’s Read more

Ch.116 Pat Still Gets to Choose           Pat and I were talking after lunch. I mentioned how nice it was just for us to be together. Her Read more

Ch.115 Year End Review: A Lewy Body Year of Transition           Dec. 31, 2021. [Note: I've jumped ahead about six blog chapters to share this essay at Read more

Ch.114 Pat has Two Almost Pain Free Hours and Ron Begins to Relax           November 2021           Diane, the nurse at The Refuge, told Read more