Ch. 149  Unprepared for Life After Lewy Body: My Fear of Boredom July 9, 2022 Today, eight days after my wife Pat died from the effects of Lewy Body Dementia, I read Read more

                                 Ch.148                              Read more

Ch. 147 Pat Quietly Passes Away June 30 and July 1,2022           I answered the phone just as I was about to leave my house to drive to Read more

Ch.146 Ron Feels a Premonition  June 27,2022. I don’t believe in premonitions, I’m telling myself. I’ve never had one, either… until this morning. But today, when I came to The Refuge and Read more

Ch. 140  A Death in the Family              May 2022           “My mom is dying.”           Hector, my good friend Read more

Ch.139 Good Day/Bad Day: the Lewy Body Roller Coaster is Still Operating           May 2022           Here’s how Pat was diagnosed with Lewy Body: Read more

Ch.138 Ron Refuses to Give Up Hope             May 2022           “I hope Pat lives at least to the end of this year,” Read more

Ch.137 Pat Was Diagnosed with Lewy Body Dementia Exactly Four Years Ago Today           April 12, 2022           This day marks the fourth-year anniversary Read more

Ch. 136: Ron’s Covid Fatigue Helps Him Better Understand How Lewy Body Affects Pat           My bout with Covid has given me insight about Pat’s Lewy Body Read more

Ch.135 A Covid Outbreak at The Refuge Includes Pat and Then Ron          April 2022.          Saturday           I noticed that Jeff, a Read more

Ch.134 “I Wonder What I’ve Missed”            April 2022           The last few days with Pat have been exciting because she’s been healthy, happy, Read more

Ch.133  Creative Dining the Lewy Body Way April 2022           Mealtimes with Pat can be intriguing adventures. Today, for example, Pat decided to push her luncheon of peas Read more

Ch.132 A Lesson in Humility: Ron the Caregiver Needs Care           I had become arrogant: Ron the caregiver had only missed seeing Pat for one day all Read more

Ch.131 A Good Day to Remember           March 24, 2022           Unplanned, I arrive early at The Refuge, at 10:45 instead of my usual Read more

Ch.130 Pat’s Protectors Work Together to Help Her Heal           Feb. 2022           The first warning signs came from Pat’s attendants at The Refuge. Read more

Ch.129 “Ron, You Used to be Funnier.” January 2022       I was having a conversation with Jackie, a woman I’ve known for over twenty years. She’s been reading our blog, Read more

Ch.128 The Everyday Club: Why We Come Daily to See Our Loved Ones January 2022           There are approximately twenty residents at The Refuge. Some of them, sadly, Read more

Ch.127 A Sudden Setback for Pat and a Big Decision for Ron           January 2022. Please note that I have backtracked to January.  I had jumped ahead Read more

Ch.126 Keeping “Victories” and “Defeats” in Perspective           March 2022           Yesterday Pat ate “real” food: A ham and cheese sandwich, a bowl of Read more

Ch.125 Pat Rallies and Says Something Beautiful March 2022           Three days ago, Pat was barely conscious, heavily sedated with morphine but unable to communicate even when less Read more