Ch.16. Slightly Unusual Behaviors (SUBs).             Pat has never been a model of conventionality. In fact, she’s sometimes     decidedly unconventional. For example, for years Read more

Ch.15 First Pat and then Ron Join a Memory Choir  First Pat Joins a Memory Choir.             August 2019. Several months ago, Pat and I attended a memory Read more

Ch.14. Waking Dreams, RBD, and Sleep Deprivation.             Recently I awoke around 1 a.m. feeling chilly. Oddly, the blankets had disappeared. I heard noises from Pat’s Read more

Ch. 13. Mortality.                     Pat and I attend in St. Paul a Lewy Body group for people with Lewy Body and their caregivers. Read more

Ch.12. We Are Still a Team.                    I’m writing this passage on the coldest day in decades here in rural Western Wisconsin: minus Read more

Ch.9. Physical Intimacy: Hugs and More.             My friends and family have been a wonderful support for me during these Lewy Body days. Recently I was Read more

Ch. 8.  “Showtime.”              In our book club the book of the month was The Namesake, by Jhumpa Lahiri. It is about a family that immigrates Read more

 Ch. 9 Questions for the New Year: 2019 and then 2020  Note: This essay was originally written in early 2019, then updated at the end of the year. 2019 A new year has just Read more

  When I was young, I had difficulty learning how to tie shoelaces. Years later someone told me it takes 32 separate physical actions to tie those laces. No wonder it Read more

Ch.7. Who Should I Tell that I’ve Got Lewy Body? Acceptance, Embarrassment, Shame and Trust.             Do you think this is an easy question to answer? Read more

Ch. 6.  Some Days You Just Want to Cry.             Today was one of those days when everything we did was interfered with by Lewy Body. Read more

Ch. 5. The Need for Support.             If someone called me seeking advice and told me that his or her partner in life had been recently diagnosed Read more

Ch.4. Good Days. Coping with LB has made me (and Pat, I’m sure) more appreciative of the natural beauty in our Western Wisconsin homestead. Almost every day lately we’ve driven through Read more

 Ch.3: Noise.             Pat and I have been going to a Scandinavian restaurant named the Norske Nook for over 20 years with our friends Ed and Read more

            Today I reached out and poked Pat’s leg. Why? To see if she was accumulating excess fluid in her body. Unfortunately, I forgot to Read more

                        Mornings are interesting in our LB world. Pat frequently awakens in the midst of a dream world in Read more

The Dialogue.       Pat Potter-Efron was diagnosed with Lewy Body dementia in April, 2018. Since October, 2018 we have been keeping a shared journal that we call the Lewy Read more