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LEWY BODY DIALOGUE

Conversations between a Thoughtful Woman with Lewy Body Dementia and her Care Partner Husband

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  • Ch.199 First Airplane Trip After Pat’s Death

    Ch.199 First Airplane Trip After Pat’s Death May 22, 2023           I’m flying tomorrow from Minneapolis to Toronto to spend a week with my brothers Art and Don, Read more
  • Ch.197 “Get Me Through December.”

    Ch.197 “Get Me Through December.” April 2023           Alison Krause is a blue grass singer with a beautiful soprano voice. This afternoon I listened to several of her Read more
  • Ch.196 Watching Pat’s Memory Choir Brings Sadness and Joy

    Ch.196 Watching Pat’s Memory Choir Brings Sadness and Joy           April 2023           This morning I attended the final rehearsal for the evening’s Springtime Read more
  • Ch.195 Reminiscences: “Tripping” with Pat

    Ch.195 Reminiscences: “Tripping” with Pat April 2023           Searching for some Lewy Body books, I happened across three journals I kept between 1997 and 2015 in which I Read more
  • Ch.194 My Friend Howard’s Joyful End of Life

    Ch.194 My Friend Howard’s Joyful End of Life April 2023           Howard was dying from a rare form of cancer. He knew it. I knew it. So, I Read more
  • Ch.193 Letting Go of a Great Resentment

    Ch.193 Letting Go of a Great Resentment           March 2023            Before Pat closed out her life at Azura Memory Care she spent a Read more
  • Ch.192 I Have a Pretty Good Life

    Ch.192 I Have a Pretty Good Life March 2023           I awakened yesterday, said good morning to Pat as usual, and began contemplating the day. Morning: drinking tea and Read more
  • Ch.191 Three Acts of Generosity Help Me Feel Hopeful

    Ch.191 Three Acts of Generosity Help Me Feel Hopeful           March 2023           Yesterday began with worry. Two days ago, Levi, my elderly collie, Read more
  • Ch.190 Doing OK But a Little Empty

    Ch.190 Doing OK But a Little Empty March 2023            By chance, I saw Pat’s cousin Cheryl as I entered the church where a concert raising money for Read more
  • Ch.189 Things Fall Apart.

    Ch.189 Things Fall Apart. February 2023           “Things fall apart. The center cannot hold.” This famous phrase, the beginning of a poem written by William Butler Yeats, perfectly Read more
  • Ch.188 I Can No Longer Keep Lakota Safe.

    Ch.188 I Can No Longer Keep Lakota Safe. February 2023           My horse is named Lakota. He’s a “quarter horse,” a type bred to run exactly one-quarter mile Read more
  • Ch.187 Note to Judith

    This week I have altered my usual format. I've asked my friend Richard Fuhrer to share a poem he wrote recently as he wrestled with whether this was the time Read more
  • Ch.186 A Joyful Musical Memory

    Ch.186 A Joyful Musical Memory January 2023           Last night I watched a PBS special show about the singer and pianist Roberta Flack. Her breakthrough song was entitled Read more
  • Ch.185 Spreading Out My Need for Affirmation

    Ch.185 Spreading Out My Need for Affirmation           After Pat died, I took up a new hobby: colored pencil drawing. That was somewhat of a stretch, given Read more
  • Ch.184 Time Is In My Hands

    Ch.184 Time Is In My Hands Jan.2023 I woke up a couple days ago, looked at my calendar, and discovered no activities scheduled for the day. No friends to visit; no volunteer activities Read more
  • Ch.183 I Am a Witness Who Can’t Witness

    Ch.183 I Am a Witness Who Can’t Witness January 2023 Two years ago, my good friend Howard told me he’d been diagnosed with an extremely rare and possibly lethal form of blood Read more
  • Ch.182 Dangerous Territory: Watching My Name is Otto

    Ch.182 Dangerous Territory: Watching My Name is Otto January 2023              I mentioned to my daughter Jenny that I was interested in seeing Tom Hanks’ new movie My Name Read more
  • Ch.181 The Shape of My New Life Is Emerging

    Ch.181 The Shape of My New Life Is Emerging Jan.2023           Something important has happened over the last two days: I can clearly see the outline of a Read more
  • Ch.180 Pat’s Been Gone Exactly Six Months Today

    Ch.180 Pat’s Been Gone Exactly Six Months Today           Jan.1, 2023  “Not all who wander are lost. Some of us are just out looking for magic and rocks Read more
  • Ch.179 I Still Cannot Separate “Alone” from “Lonely”

    Ch.179 I Still Cannot Separate “Alone” from “Lonely” Dec. 2022             Pat passed away on July 1, 2022. That means her six-month anniversary will be New Year’s Read more
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Ron & Pat Potter-Efron

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